Cancer
Journal

Just Tired of It All

November 23, 2003

Today is my son's 30th birthday.  I haven't even gotten a gift for his and Dea's wedding last month!  I am missing a lot of fun.  It's my goal to have more fun.  But, to do that, I have to learn how.  I'm so used to finding fun in work that the social type fun I'm wanting to expand upon is not really my best event.

The staff at the radiation institute have found their rhythm.  This past week has been basically in and out.  Almost a drive through.  They are good about reminding when appointments may take longer.  Kudos.

This past week I was very tired and a bit discouraged.  I thought, "if I'm tired from the radiation, it's premature (only 4 weeks in), what do I have to look forward to in terms of accumulation?"  On the other hand, it could just be tired from overdoing last week (not that I would ever do that, ha-ha).  Thursday's acupuncture treatment helped put things right.  From Thursday afternoon on I felt great.  Then there was yesterday (Saturday) which was too long a day after too tiring a week.  Now I am again slumping.  Maybe I could use 2 acupuncture treatments a week and, as always, a reduced schedule.  But, wait, there is really good news.  Thanksgiving is coming at just the right time - this coming week is a short work week.  Bob and I are invited to a dinner with some other adults short on family.  Hurrah.

Saw Kathy at the radiation institute Friday.  She breezed through her treatments as I have.  Honestly, she still looks really well.  She says except for cancer and its treatments, she feels great.  Her cancer has moved to bone.  Her sister had a double mastectomy last week.  I am unable to handle this information with as much grace as I would like.  I have been so depressed.  My husband is getting the brunt of my irritation.  Sign off so I can go to the other room and apologize and make things soft.  He was sick this week, a fever with aches and chills.  We were both worried it was the flu, bad for him and really bad for me.  But it went away very quickly.  Two sick people taking care of each other - aah, the glamour of marriage.

November 26, 2003

Burns on my breast.  The doc gave me a cream to use.  It isn't pleasant.

November 27, 2003

Thanksgiving.  I am having difficulty swallowing.  What better timing? Anyway, had a nice visit with some friends with really good food.  I was able to eat everything I wanted, I just had to think about it.  I was too tired to really go visiting, but I went anyway.  It was nice and I'm glad I went.  I will be glad when my energy improves.  Now, I'm not sleepy, just tired, so I can't sleep, I just hang around.  Yoga helps but only for a little while. 

To allow for comfort when wearing a bra, I rigged up some padding with a sleeve (very, very soft fabric) that I used to wear under my knee brace between skin and bra.  It is working quite well, just bulky.

November 28, 2003

I think I passed on my supplements yesterday.  Today, first thing I got them stuck in my throat and had to throw up to get them out.  It was unpleasant.  Now my throat is sore.  On top of that I have a rash all over my body.  I can't think what I have done.  It itches.  At first I thought, great, the one day I don't see a million health care professionals.  But, as luck would have it I have an appointment with the acupuncturist.  He gave me Bach Flower Rescue cream.  It's great.  I am using it on the burn also.  It seems to do better than the prescription the doc gave me.  The acupuncturist says I can use both creams, just alternate, but I like the Bach cream best.  He says it has a calming component.  My rash is nearly gone.

A couple of weeks ago the acupuncturist changed one of my herbs.  The previous was for reducing fluid and calming the digestion system during chemo.  Now I have an herb that brings in fluid for the heat produced by radiation.  I like the herb, but find it hard to comply since I have to heat water (presumably not in microwave) to take it. It's easier to take than tablets and capsules but this is the 4th herb I have to mix with water, each separately.

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November 29, 2003

Rash is gone.  I have just this one spot I'm scratching which I believe to be a combination of stress and radiation.

December 7, 2003

The past week has been one of great fatigue. I'm not so sleepy as just bone tired.  Some days I find it difficult to concentrate, to think.  Some days I find it difficult to jump out of the "I'm sad" mode.  That's totally useless, but it does come.  Beginning tomorrow (Monday) my radiation will be only on the scar, the scar boost.  I will get that for 7 treatments, then done.  The skin on my breast is crusty and reddish brown.  It's quite unattractive.  I realized last week that after the last radiation treatment it will be a month or longer before I see an allopathic physician - oh, my, healthcare withdrawal.

I saw a program on the health discovery channel that said bone marrow aspiration from the pelvis was a better indicator than sentinel node biopsy for metastases.  I emailed my doctor.  He ways he did it as part of a clinical trial.  So, why do they put info on TV that is not available to us?

December 10, 2003

Burns, ouch.  In addition, I have been on this pain medicine so long that there is probably a physical dependency.  After this is over I get to detox.  The doctor made all sorts of suggestions on how to deal with the burns, but we tried most of them last week (when he was out of town).  They just didn't work for one reason or another.  So, the strategy is to just bear it (of course, with the help of pain relief in one form or another).

Only 4 more treatments.  I get happier each day.  I get my body back.

December 11, 2003

As my skin broke down and I had more marks that I was trying to keep intact I shied from showering.  I can get by with that (I think) because I don't sweat.  Finally, I couldn't stand it anymore.  I took a shower and old skin sloughed away.  My burns look so much better.  I apologized to the radiation techs.  But, I also asked why they didn't call me on my poor hygiene.  Funny.  Embarrassing.  True.

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